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Table 1 Summary of Included Studies

From: Research collaboration with care home residents: a systematic review of public involvement approaches

Author and Publication Year

Country

Aim of study

Definition of Public Involvement Activities

Methodology

People involved

How were residents engaged? (e.g. pictures, 1:1, focus group etc.)

de Boer et al. [21]

Netherlands

Co-creation of an alternative nursing home model ("the Homestead")

Participatory Research Approach to co-creation

Case study design using PAR methodology

Older adults, family members/representatives, care staff, management, architects, and design staff

Not specified

Giné-Garriga et al. [22]

Scotland and Spain

Co-create interventions to reduce sedentary behaviour in care home residents

Co-creation and PAR

Qualitative intervention using PAR methodology

Residents, University students, researchers, staff members, family members and policy makers

Workshops/focus groups—no further description provided

Luijkx et al. [23]

Netherlands

Describes new collaboration between science, care practice, and education designed to improve long-term care for older adults

‘Joining Forces', evidence-based knowledge, co-creation, collaboration

Implementation process and intervention

Academics (various levels/backgrounds), communication, education and implementation experts, care professionals, older adults, teachers

Interviews and interactive meetings using'creative work forms', e.g. board games. Approaches to communication are managed by the designated'communication expert'

Hemphill et al. [24]

Canada

Describes a Quality Improvement initiative within a long-term care organisation

Stakeholder engagement, co-creation, and stakeholder groups

Mixed method consultation—surveys and small group conversations

Older adults, family members, care home staff, local authority staff

fact-gathering conversations, stakeholder survey, half-day stakeholders meeting

Petriwskyj et al. [25]

Australia

Explore understandings and practices of engagement within an aged-care organisation from both staff and client viewpoints, examining the extent of client power

Engagement

theoretical paper

Care staff, Older adults ('clients') across residential, community and retirement living settings

semi-structed interviews, focus groups

Woelders and Abma [26]

Netherlands

Presented ways enhance the collective involvement of care home residents, including power dynamics

Participatory Research Approach

Qualitative

Older adults and facilitators (spiritual counsellors)

semi-structured interviews and reflection