Table 1 SKIP organizational roles and responsibilities directly related to patient partnership
Role title | Responsibilities related to patient partnership/engagement |
|---|---|
Patient Partnership Advisor | -Direct contact for PCAC and individual patient partners working with SKIP -Provide expertise on Patients Includedâ„¢ principles and requirements -Liaise between the wider SKIP Network, partners, and PCAC -Advocate for equity, diversity and inclusion (EDI) across SKIP activities, including during the formation of new initiatives and opportunities -Develop and update resources to support full scope of patient partnerships, including recruitment, onboarding and registration materials -Advise and mediate emergent issues, obstacles, or concerns from SKIP staff and/or patient partners related to collaboration and other patient partnership activities -Support onboarding and initial contact with patient partners engaging in SKIP activities -Support all SKIP staff with relationship-building and maintenance with patient partners, including participating in regular check-ins with patient partners |
Engagement and Impact coordinator | -Maintain and align patient partnership resources with SKIP administrative requirements -Maintain and update patient partnership database -Establish and update administrative financial requirements for patient partnership compensation payments and honoraria -Support Knowledge Brokers with outreach, relationship-building, and collaboration with patient partners |
Knowledge Broker | -Develop, update, and support dissemination of patient partnership opportunities, utilizing SKIP’s Patient Partnership Opportunity template -Ensure patient partnership opportunities are integrated into novel initiatives and activities -Provide briefing and onboarding to patient partners to orient them to participation in novel initiatives or collaborative activities -Support SKIP Administrative Centre staff with onboarding of patient partners for financial compensation and/or honoraria -Provide and organize regular check-ins with patient partners to ensure sufficient support provided and/or concerns addressed |